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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
Newcastle upon Tyne, UK
7 days ago
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A MyEpilepsyTeam Member

When we have epilepsy we have dead brain cells which effects our memory. I’ve also read that repetitive seizures will harden and shrink your brain. The reduction of brain cells effects our memory.

6 days ago (edited)
MyEpilepsyTeam

How does epilepsy affect memory? It's one of the most common concerns people with epilepsy share, and for good reason — memory changes can affect nearly every part of daily life.

Epilepsy can impact memory in a few key ways:

- Seizures themselves can disrupt the brain's ability to form or retrieve memories, especially if they Show Full Answer

How does epilepsy affect memory? It's one of the most common concerns people with epilepsy share, and for good reason — memory changes can affect nearly every part of daily life.

Epilepsy can impact memory in a few key ways:

- Seizures themselves can disrupt the brain's ability to form or retrieve memories, especially if they involve the temporal lobe or hippocampus
- Anti-seizure medications can cause drowsiness and concentration problems, making it harder to absorb and retain new information
- After a seizure, many people notice memory difficulties in the minutes or hours that follow

As one MyEpilepsyTeam member put it: "Each time I have a seizure, it's like more and more of my memory is taken." The type of memory most often affected involves personal events and appointments (episodic memory), rather than general knowledge or facts.

There are things that may help:

- Better seizure control through medication is one of the most important steps
- Writing things down after conversations or events is a practical tip many find useful
- Memory rehabilitation programs have shown promise in research
- Working with allied health professionals like occupational therapists or speech-language pathologists can help develop recall strategies

If medication seems to be affecting memory, it's worth raising that with a doctor — but never stop taking anti-seizure medication without consulting them first.

7 days ago
A MyEpilepsyTeam Member

Between our seizures and and medications we all struggle with memory and cognitive skills.

6 days ago
A MyEpilepsyTeam Member

I was diagnosed at age 62. My memory was my gift. It's been stolen from me.

"Don't it always seem to go that you don't know what you got 'til it's gone".
Joni Mitchell

6 days ago
A MyEpilepsyTeam Member

Memory is an issue. I sometimes spend the whole morning with the same subject and when I try to remember bits and pieces from it that afternoon, I can't.

6 days ago

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