Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question in Newly Diagnosed group 💭

Hi! I have been experiencing what feels like seizures for the last 6+ weeks. In the process of trying to get set up with a neurologist but it’s a lengthy process. I captured some video files of some of them that have happened during sleep.
Is it possible to post one on here to get thoughts on it? I know of course it’s not a diagnosis and still planning on showing to my neurologist but I’m trying to figure out if I need to try to get them to see me sooner if it’s a serious kind.

October 15
 · 
Reactions
A MyEpilepsyTeam Member

Yes . Many of us have posted ans shared some type video

October 15
MyEpilepsyTeam

Videos can't be reviewed here, but the great news is that what you're doing — recording your episodes — is genuinely one of the most helpful things you can do. Neurologists frequently say that video footage has been a game-changer in understanding unexplained episodes, and it can significantly speed up the diagnostic Show Full Answer

Videos can't be reviewed here, but the great news is that what you're doing — recording your episodes — is genuinely one of the most helpful things you can do. Neurologists frequently say that video footage has been a game-changer in understanding unexplained episodes, and it can significantly speed up the diagnostic process. As for whether to push for an earlier appointment, here are some signs that it's worth calling the neurologist's office to request urgent or sooner review:

- Seizures lasting more than 5 minutes
- Seizures happening in clusters (one after another)
- Not returning to normal within a reasonable time after an episode
- Injury occurring during an episode
- Episodes increasing in frequency

If any of these apply, don't hesitate to call and let them know. Offices can often triage sooner when given specific details. In the meantime, keep a log alongside those videos. Note the time, duration, what was happening beforehand (like sleep quality), and how you felt after. These details, paired with the footage, will give your neurologist a much clearer picture and could make your first appointment far more productive.

October 15

Related Questions

View All
A MyEpilepsyTeam Member asked a question 💭
Roachdale, IN

A MyEpilepsyTeam Member asked a question 💭
Midland, MI

A MyEpilepsyTeam Member asked a question 💭
Lewiston, ME