That sounds like a really tough road — a successful lobectomy, and then two more challenges show up uninvited. It's understandable to feel frustrated when you're told options are limited.
It's worth knowing that "nothing will work" doesn't always tell the whole story. There are several treatment avenues for catamenial Show Full Answer
That sounds like a really tough road — a successful lobectomy, and then two more challenges show up uninvited. It's understandable to feel frustrated when you're told options are limited.
It's worth knowing that "nothing will work" doesn't always tell the whole story. There are several treatment avenues for catamenial epilepsy that a neurologist or gynecologist could explore with you:
- Antiepileptic drugs (AEDs) — dosages can sometimes be adjusted around your cycle when seizures are more frequent
- Hormonal therapy — progesterone has shown promise, with one study finding 72% of women had reduced seizures over three months
- Lifestyle changes — daily exercise, stress reduction, and consistent sleep can help reduce seizure frequency
- Neurosteroids — newer treatments like ganaxolone are being researched as potential options
In very extreme cases, ovary removal surgery exists, but that's considered a last resort due to its permanent effects. For PNES, it's important to know that it's driven by psychological stress rather than brain activity, and stress itself can also trigger epileptic seizures. Addressing stress through therapy or other support can make a real difference.
Getting a second opinion from a specialist who manages both catamenial epilepsy and PNES together could open new doors. You deserve more than "nothing will work."
October 12
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