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For epilepsy warriors that have had surgery (ablation, resection, RNS) did you have success?

A MyEpilepsyTeam Member asked a question 💭
Lansing, MI

Are you still on medications? Are you still seizing? Were there any side effects?

September 29
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Answer Summary

Members shared a wide range of outcomes after epilepsy surgeries like VNS, RNS, DBS, and temporal lobectomy, showing that results can vary... Read more

Members shared a wide range of outcomes after epilepsy surgeries like VNS, RNS, DBS, and temporal lobectomy, showing that results can vary greatly from person to person. Some members found little to no relief and continued having seizures while remaining on medications, while others experienced significant improvement, including one member who became fully seizure-free and went off all medications years after surgery. A recurring theme was the emotional weight of living with drug-resistant epilepsy, balanced by the hope and encouragement that success stories brought to those still considering their options.

A MyEpilepsyTeam Member

I have MANY Questions and concerns. Seeing these success stories give me hope! Congratulations 💜

September 29
A MyEpilepsyTeam Member

I can’t answer about the RNS . But I have Experience in the VNS and the DBS that I have now.

September 29 (edited)
A MyEpilepsyTeam Member

Hi everyone. I’m not able to have surgery since both of my hemispheres are really infected. This sucks.

October 6
A MyEpilepsyTeam Member

VNS is not an option for me but I would be curious to know about your testing journey/experiences. I had a tibia plateau fracture in July of 2025, I feel your pain! You got this 💜

October 4
A MyEpilepsyTeam Member

I had a temporal lobectomy on the left side back in December of 2000. I got total control of my seizures and went off my last med 5 1/2 years after my surgery.

September 29

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