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I’ve been waiting for years to have surgery and finally got call yesterday to schedule for October 28th. Have other appointments to meet with surgeon and nurse and ask questions. Has anyone else had that surgery?
Answer Summary
Members rallied around someone preparing for a Left Frontal Lobectomy Temporal surgery, with many sharing their own experiences after having a... Read more
I had a left temporal lobectomy in 2000. I've been seizure-free ever since.
@A MyEpilepsyTeam Member I hope everything works out for you. If you have any questions I might be able to answer, feel free to ask.
I had Left-temporal lobe surgery in 2014, and I will be 12 years seizure-free next week. I had to take speech therapy and had to learn to work around the blind spot, but you can do this; I am walking proof. I went back to college after surgery, and I am now pursuing my Master's. I never accept no as an answer. Here is the link to my interview with ABC News from 2022
https://www.youtube.com/watch?v=hKk9g3Ppg3g&...
https://www.youtube.com/watch?v=hKk9g3Ppg3g&...
@A MyEpilepsyTeam Member
I just visited with the surgeons about the temporal lobectomy. My neurologist says it’s the only option I have left to help with my epilepsy. Ive read some scary stories about the temporal lobectomy. I already talked to surgeons but decided until a point where my neurologist can also be a part of the conversation. In the Q @A MyEpilepsyTeam Member section you can see where I posted asking about the temporal lobectomy and can read all of the responses Ive received from others. I pray we both have luck.
@A MyEpilepsyTeam Member
Thank you for wishing me luck. I’ve already had the VNS and RNS and saw no improvement. My battery is now dead in my RNS but doctors have told me it’s not worth changing the battery because they’ve seen no improvements. Doctors have now told me that the Temporal Lobectomy is my only remaining option. I’ve heard several people on here say how the surgery made it to where they could no longer do certain things and it changed their lives in a worse way. That makes us wonder if it’s worth taking the risk of a temporal lobectomy. I’ve already had open heart surgery and several other brain surgeries so I’m not too worried about that. I just wonder how bad the aftermath could be on me. I’ve had epilepsy for 34 years.
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