I had a left temporal lobectomy back in 2000. I have total control of my seizures and I haven't taken meds for the last 20 years.
2 days ago
i went through many tests and was found eligible for a Temporal Lobectomy on the right side. At the time I had taken all the AED meds, all combinations and dosages. I was told I could have a stroke. However, I felt if I did not, I would always wonder "What would have happened if?" I am still on meds, inclidomg Epidiolex.. They found it worked on people like myself who could not be controlled with meds.
2 days ago
What a big decision to be navigating — it's great that options are being explored! Both RNS (responsive neurostimulation) and resection are valid paths for focal temporal lobe epilepsy, and the right choice really depends on individual factors.
Here's a quick breakdown of each:
Resection (Temporal Lobectomy)
- Involves Show Full Answer
What a big decision to be navigating — it's great that options are being explored! Both RNS (responsive neurostimulation) and resection are valid paths for focal temporal lobe epilepsy, and the right choice really depends on individual factors.
Here's a quick breakdown of each:
Resection (Temporal Lobectomy)
- Involves surgically removing the area of the brain where seizures start
- The most common and highest-success epilepsy surgery
- Can lead to long-term seizure freedom
- Best suited when the seizure origin is clearly identified on EEG and MRI
RNS (Responsive Neurostimulation)
- A device is implanted that detects and responds to seizure activity
- A good option if resection isn't safe or suitable
- One study showed RNS reduced seizures by 75% after nine years
- Does not require removing brain tissue A few things worth discussing with the neurologist or neurosurgeon:
- Where exactly seizures start — precise mapping is key for resection candidacy
- Risk to critical brain functions — the right temporal lobe can affect memory and language in some people
- Seizure frequency and severity — this can influence which option offers the best quality of life
- Personal goals — seizure freedom vs. significant reduction
Early surgical intervention tends to lead to better outcomes, so it's worth having these conversations sooner rather than later. A specialist team experienced in epilepsy surgery will be the best guide here.
July 31
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