Powered By
Yesterday at my appointment I was reading the paperwork, and it had all these agreements about not cooking on a flame, not driving, not using sharp knives, etc. I understand safety is important, but it also hit me hard. I've always been very independent. Now I have to rely on someone to drive me places, can't sleep by myself, etc. It's overwhelming.
I’m a very independent person. Unfortunately, I had to go back to living with my parents, so I feel lucky enough that they’re taking care of me!
What you're feeling is completely valid, and you're definitely not alone in this. Many people with epilepsy go through a grieving process when they realize their daily routines need to change. It's a big adjustment, and it's okay to feel overwhelmed by it.
A MyEpilepsyTeam member put it really well: "It's not fun or easy not Show Full Answer
@A MyEpilepsyTeam Member
My whole life has been that very same way. I’m in my 40’s and have lived with my parents my whole life as I cannot drive or do other things that are a risk if I were to have a seizure. So my parents have driven me everywhere my whole life so I’ve never even had independence living with epilepsy since I was 10 years old.
I do not know what a Crashout is, so do not know if I had one.
Katrina, I am living in Elderly Housing with an apartment. As I cannot cook, and am very disorganized, Verna, my Caretaker comes in 3 days a week for 3 hours. She tries to keep things organized. I missed a 15 minute appointment with my GP for a follow-up. He did not charge the $75 Doctors charge if you miss them. I also have a Trustee and a Conservator who are responsible for my health, general well-being and money. She pays many of my Bills.
Join
Your Privacy Choices
