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Position from a couch or even a regular chair or recliner, but still have difficulty getting yourself up in a standing position. I’m noticing it more and more as the weeks go by .

May 28
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Answer Summary

Members rallied around a question about increasing difficulty getting up from lying or seated positions, with many sharing similar struggles... Read more

Members rallied around a question about increasing difficulty getting up from lying or seated positions, with many sharing similar struggles involving weakness, balance issues, and blurry vision that their doctors had dismissed. Several members encouraged seeking a new neurologist or seeing an orthopedic specialist or neurosurgeon, noting that a current neurologist's response of 'you're just getting older' was unhelpful, while others suggested practical aids like lift recliners, wheelchairs, canes, or stairlifts. A recurring theme was the importance of self-advocacy, not giving up on finding answers, and leaning on community support while awaiting MRI results.

A MyEpilepsyTeam Member

Don’t know if I’m having the the same issue . But after I wake up in any position, I have to wait for awhile before I stand up. I maybe awake but my body isn’t ready to get up and walk. Once I feel my body is ready, I’ll finally stand up and start walking.

May 28
A MyEpilepsyTeam Member

Hallo Quinn .. this be William, husband of Jen .. would it be possible to get a stairlift installed in your home to help you get safely up and down stairs? Hugs and prayers from William and Jen 💜💙🤗🤗🕊🕊

June 3
A MyEpilepsyTeam Member

Hallo Quinn .. this be William .. Randy and others on here all be right .. and what your neurologist say to you be pure BS .. the part about getting older .. I be suffering same issues since losing my leg to nerve damage from brittle diabetes and AEDs. and he straight with me and say it be nerve damage from the surgery .. the suggestions all give be good ones .. what Randy say about listen to your body before getting up is one I do ., as the brain is sending the signal to move ., yet the nerve damage slow the message ., as you wait a bit ., eventualky it gets there and you can move .. there may be a surgery they can do to help you .. and the suggestion to see an orthopedist be a good one ., Jen and me think you be needing a different neurologist ., one who tries to feed you BS about getting older needs to be shown the door ., no matter what kind of doctor., they not help if they not listen to you .. so ., how I know this?.. I lose my leg at 16 .. so my symptoms NOT be from growing old .. Jen and me try 3 neurologists before we find the one we got now .. and he listen ., order tests ., and he find answer ., when they amputate my leg ., they be leaving a wee bit of nerve .. they suppose to close off all those snd miss one ., and it grow into what look like a tiny ball of yarn .. this be a neuroma .. at the scar .. so ., a minor surgery under nerve block anesthesia to take it out ., and my symptoms be gone ., so .. do not give up ever Quinn .. find a neurologist who will listen to you ., as your symptoms be serious and need to be dealt with ., maybe you not have neuroma like me ., but you got something causing your troubles .. and you deserve to be heard and helped.. we send you much love and many hugs and prayers ., William and Jen💜💙🤗🤗🕊🕊

May 29 (edited)
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member get a recliner with a self-dumping remote.

July 28
A MyEpilepsyTeam Member

Sharon it’s weird the thing we notice after hitting a certain age. But the weakness for me in my spine started late last year. Since then it’s more and more difficult for me just to get out of my bed.

June 8

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