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I'm pregnant but I'm not in the safe zone yet so we haven't told many people yet. When I do I was thinking about sharing a video of my epilepsy related injuries including how I lost my first child to a seizure, me getting 2 eegs, my scar from epilepsy surgery, me going in for another surgery and saying the first failed and made me worse, than a picture of me going to a different hospital out of state for answers showing me getting the sEEG done, me having half of my head shaved for it and the… read more
I would shake your hand first for being open about your epilepsy and then sharing what you went through and wanting to stop it happened to anyone else's is so wonderful and thoughtful of you go for it love what your doing I think a long of people will be grateful for it
Now single and wonder if they feel bad for the lying?
@A MyEpilepsyTeam Member Congratulations to you and yours! That is a powerful and useful story. Just enough, not too much.
Congratulations!! I think it is a good idea. So many people do not know anything about epilepsy. I have tonic-clonic epilepsy. I had to explain to people who are supposed to know what it is and how to handle it. They were amazed by how little they actually know. More people must be made aware of what epilepsy is (different types) and how to address and handle it. I think the video is a great idea. Thank you for sharing your story like that. I am reaching one at a time; you can reach a whole lot more.
Congratulations. I had my daughter after my TBI. My medication was adjusted and no other tests except for ultrasound was done. She is now 26 and healthy and engaged.
I had no issues until she dropped.
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