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A MyEpilepsyTeam Member asked a question 💭
Conroe, TX

I won’t lie there were times I wanted to hide my seizure issue so I could be liked. I felt insecure because I couldn’t drive and I just always felt a tid out of place.

May 9
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Answer Summary

Members opened up about how epilepsy has deeply shaped their social lives, with many describing themselves as homebodies or hermits, largely... Read more

Members opened up about how epilepsy has deeply shaped their social lives, with many describing themselves as homebodies or hermits, largely due to not being able to drive and the unpredictability of seizures. Several members shared that family outings, church, garden time, and online communities like this one have become their main sources of connection and support. A recurring theme was finding inner peace and acceptance while navigating isolation, with many expressing gratitude for the understanding they find within this community.

A MyEpilepsyTeam Member

Hallo .. Jen and me do our best to get outside each day to pray in our garden .. where we feel close to Our Father .. we be blessed with three awesome sons ., they be loving us .. and loving me as I be .. when they be taking us with them .. they see I be respected and protected ., I be feeling safe with Jen and our sons .. And on here we find a weonderfujl world of friends who be showing us acceptance in quiet love ., for you all we be thankful and grateful .. gum beannaiche adh Dia thu . hugs and prayers from William and Jen 💜💙🌱⚘🤗🤗🕊🕊

May 10
A MyEpilepsyTeam Member

I'm definitely more of a hermit these days since the seizures have returned after nearly 26 years without them. I thought I was free and clear but I always knew it could come back at any time.

I recently realized how little I leave the house when I came back from a walk to the shops and startled the cat so badly he puffed up his tail, arched his back, and had a wild look in his eyes like "I thought you were sleeping upstairs!"

May 9
A MyEpilepsyTeam Member

I guess my social life is hanging out with family outside cuz I really don't drive I mean I if we go anywhere my dad

May 9
A MyEpilepsyTeam Member

I really don't have a social life. At least when it comes to having a girlfriend. As for getting out to do things, forget that noise..... especially if you don't drive.

The only time I really have any contact with people is when I go to church. I know this sounds sad, but I am use to it and I have enough things around the place that keeps my attention going. Sometimes is a real blessing.

Most people would probably go nuts. I however have an inner strength that doesn't quit. I don't allow things to get to me. That's because I have accepted the path that was given to me.
From a fellow warrior and friend,
Tom W. Morgan
Researcher in Epileptic Triggers

May 9
A MyEpilepsyTeam Member

I try not to let it affect my “social life “ but it usually ruins any plans I may have made

Every once in awhile it’s something I Really wanted to do.

May 9 (edited)

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