Does SUDEP happen only during sleep?
No, SUDEP doesn't happen only during sleep, though it does tend to occur more often at night. Most cases of SUDEP happen during or soon after a seizure, regardless of whether you're awake or asleep.
The highest risk is for people who have frequent generalized tonic-clonic seizures Show Full Answer
Does SUDEP happen only during sleep?
No, SUDEP doesn't happen only during sleep, though it does tend to occur more often at night. Most cases of SUDEP happen during or soon after a seizure, regardless of whether you're awake or asleep.
The highest risk is for people who have frequent generalized tonic-clonic seizures, especially at night without supervision. However, SUDEP can occur at any time.
The good news is that reducing seizure frequency significantly lowers SUDEP risk. If you become seizure-free, your risk becomes extraordinarily low. Working with your healthcare team to find the right treatment plan is key to managing this risk.
Since you've had seizures from a brain injury since 2022, it's important to have regular conversations with your doctor about your seizure control and SUDEP risk. They can help you understand your individual risk level and adjust your treatment as needed.
March 25