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Does anyone have suggestions for a good seizure monitor? I am understanding that apps for your watch can have a lot of false alerts?

A MyEpilepsyTeam Member asked a question 💭
Old Forge, NY
March 14
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MyEpilepsyTeam

What are some good seizure monitor options, and do watch apps really have a lot of false alerts?

You're right to consider the false alert issue—it's a real concern with some devices. Here are several monitoring options to discuss with your neurologist:

Wearable Devices:

* Embrace2 - FDA-approved for detecting generalized Show Full Answer

What are some good seizure monitor options, and do watch apps really have a lot of false alerts?

You're right to consider the false alert issue—it's a real concern with some devices. Here are several monitoring options to discuss with your neurologist:

Wearable Devices:

* Embrace2 - FDA-approved for detecting generalized tonic-clonic seizures in adults and children 6+. It measures electrodermal activity, motion, skin temperature, and stress levels. Connects to an app and can alert caregivers.

* Epilert Bracelet - Detects seizure-related movements and heart rate changes. Sends alerts with your location to caregivers and provides real-time updates. Not yet FDA-approved.

* SeizAlarm - Works with iPhone and Apple Watch to detect seizure movements and heart rate changes. The company notes using iPhone alone is less accurate than the iPhone-Apple Watch pairing.

* SOS Smartwatch - Requires you to press a button when you feel a seizure coming. Good if you have warning signs, but doesn't automatically detect seizures.

For Nighttime Monitoring:

* Mattress sensors - Detect movement patterns and sounds like muscle spasms or vocalizations during sleep

* Camera systems (like SAMi-3) - Use infrared technology to record video and audio, detecting seizure-like activity and alerting caregivers

These systems aren't completely accurate and may send false alarms, but they can still be valuable for monitoring. Questions to Help You Choose:

When talking with your care team, consider:

* Do you want something wearable or a bedside/mattress device?
* Do you live alone and need alerts sent outside your home?
* Do you want GPS tracking for use outside the home?
* Will you wear it daily or just during sleep?
* How is data shared with your family and doctors?
* What's your budget, including any subscription fees?

Your neurologist can recommend which device best fits your seizure type and lifestyle. A MyEpilepsyTeam member mentioned using Seizure Tracker app to log seizures and identify patterns over time, which can complement any monitoring device you choose.

March 14
A MyEpilepsyTeam Member

Thank you! We are looking at everything- night time and day

March 15
A MyEpilepsyTeam Member

You're welcome from us here anytime amen

March 15
A MyEpilepsyTeam Member

Are you looking to get something that’s wearable or something you can use at night that does not wearable. I have two suggestions if you’re looking for something that’s not wearable. There is a device that is used in the evenings called the Sami it’s approved from the epilepsy foundation actually a family that has a child some years ago trained a monitor believe it or not baby monitor to recognize their child’s seizure activity and it works so well that epilepsy foundation approved it. Secondly if you have seizures, you want to detect during the daytime and have an apple I watch. I have read that.SeizAlarm will detect symptoms that start a seizure as well as the oncoming seizures, depending on what type it is that you’re trying to detect I’ve done research for myself. Did the fact I’ve dealt with seizures over 50 years, but that’s my full input for you, another thing I thing I just thought of the embrace to watch is for seizures, but only for generalized seizures that I’ll detect.

March 15 (edited)

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