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She is 3 and has cerebral palsy.
@A MyEpilepsyTeam Member , You could get a second opinion from a different Neurologist. Do you have any kind of Epilepsy Devices that you’re using for your daughter? If not, you can see if y’all might qualify for a grant to get help from The Danny Did Foundation & their website is www.dannydid.org & click on the lines at the top of the page & then a list should come up & click where it says “Epilepsy Devices” & click on that & read about the assistance program they offer. Last time I checked, they offer a few different devices to choose from but read carefully because I know for a while they had some pictured that weren’t covered by the grant. Danny was a little boy who passed away from Sudden Unexpected Death in Epilepsy, SUDEP & so they developed The Danny Did Foundation to help bring awareness to SUDEP. If you have any questions about the Epilepsy Device grant, just contact The Danny Did Foundation & they’ll be glad to help you. But keeping your daughter awake after a seizure can be draining her energy even more, because many of us, including myself, can be weak & very tired after a seizure & have to go back & lay down & rest. One time I felt tired for a whole week & that doesn’t usually happen. I hope this helps. But don’t hesitate to reach out to The Danny Did Foundation about a grant for an Epilepsy Device. Plus, you can go to www.epilepsy.com & you’ll find helpful information about Epilepsy & seizures & you can look up your local Epilepsy Foundation & they likely offer support groups-possibly ones for parents as well, plus programs, events & different types of resources like if you have trouble affording her medicine or something. Good luck. Your friend in Texas, Becky
Honestly you should ask your doctor.
Thank you for the reply!
I would reach out to the neurological specialist regarding the number of seizures taking place. I would also be keeping a log of when the seizure activity is taking place so when you speak directly with the specialist or to the RN at the specialist office you can give them that information to pass along to the specialist as it is quite valuable for a patient's care. I use the journal on my smartphone to keep track of all seizure activity then will share it with them when going into the office. In other situations, If you feel it is better for your needs, you could use a seperate note book keeping notes of everything. I wish your daughter well and do hope things begin improving quickly with this matter.
Should you keep your daughter awake after nighttime seizures?
It's understandable to worry about your daughter's nighttime seizures. However, keeping her awake isn't typically recommended after a seizure. After a seizure, the brain needs time to recover, and sleep is actually part of that natural recovery process.
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