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A MyEpilepsyTeam Member asked a question 💭
Kansas City, KS

There’s many things I once could do but epilepsy put an end to it. Things such as
riding a bicycle, using power tools, being near water alone, going on walks, climb heights, mow the lawn, live on my own, etc.

December 21, 2025 (edited)
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Answer Summary

Members opened up about the many activities epilepsy has taken from them, with driving being the most commonly mentioned loss, followed by... Read more

Members opened up about the many activities epilepsy has taken from them, with driving being the most commonly mentioned loss, followed by riding bikes, playing sports, working certain jobs, and exercising safely alone. Several members shared deeply personal stories, including giving up boxing and field hockey, losing a leg due to seizure-related complications, being forced to retire, and struggling with memory and attention that made school and careers harder. A recurring theme was the emotional weight of these losses, balanced by stories of resilience, including one member who became seizure-free after brain surgery and reclaimed nearly everything.

A MyEpilepsyTeam Member

Great Q Sean x .... I was an avid field hockey player from the age of 9 (30yrs ago now) I was playing up until 28 when. My ex left me and took our son from me and I haven't saw him since he was 2. He will be 7 in March...it completely broke me and started my Grand Mal seizures and I had to stop playing as I was just dropping on the pitch. Breaks my heart to this day cause I hadn't had a grand mal since I was 22 when I was broken when my Grandad died. ...I have a sensitive soul. But her takng my son and leaving me broke my heart and my head. I miss my boy so much though. I cant even ride a bike or jog or just the small bits of exercise as it triggers my absences then they build and I know I need to stop before I hit the deck.
Maybe when I get the VNS I can try again if my knees don't give up first. Loves all 💜

December 21, 2025 (edited)
A MyEpilepsyTeam Member

Keep the faith 🙏🏽

January 23
A MyEpilepsyTeam Member

Sex, vision , attitude, social life is gone, takes 10x longer to achieve anything, depression, anxiety… I can go on and on.

December 22, 2025
A MyEpilepsyTeam Member

For me, mowing was something I kept doing because we had a mower that automatically stopped if the lever was released. I had to give up riding bikes, playing my clarinet, doing archery, walking by myself, and so much more. My Mother did allow me to be home alone, but that was because the seizures were increasing over time, not all at once. I was most heartbroken by the car driving. I had always loved that. I went almost 15 years without being allowed to drive. I finally had my brain surgery, and I am now more than 11 years seizure-free. I have gotten everything back, except I haven't had a chance to try bike riding yet. I can't legitimize buying a bike if I can't ride it, and that is a lot of money to waste. Getting back into archery had to be THE BEST!! I was in college working on my bachelor's degree, and Wilson College had an archery club. I came in and warned them it had been a long time. I learned later that I had inherited my granddad's genes for loving archery and his intelligence, which helped me do well in college after surgery. My first shot of the arrow was dead, dead center on the target, and they told me I was now a member of their club. Never give up. I love proving people wrong, I am working on my Masters and in the top of my class!

December 22, 2025
A MyEpilepsyTeam Member

Driving.

December 21, 2025

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