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To your doc and then they decided to go with your idea about it, I have brought up questions about some procedures and was brought up to my doc and the medical system, like brain surgery that was put out in front of me and a doctor's appointment, I did turn down the surgery brought up to me, I didn't think it was necessary for me and my current condition, I have told my doc about anything that may seem or is not working like it should if that is happening with me, I have a good sence of… read more
How do you navigate treatment discussions with your doctor when considering procedures like epilepsy surgery?
It sounds like you're doing an excellent job managing your epilepsy care through open communication with your doctor. Being comfortable discussing what's working and what isn't is a crucial part of effective Show Full Answer
I do not have any surgery for my Epilepsy, It is controlled by the meds.
About 40 years ago, I had numerous tests, hoping the Seizures would be controlled. I brought it up, because nothing else worked. They were not stopped, but did stop possible damage to my Left, Dominant side. Years later, I was tested again, as they found a site in the left Occipital Lobe. That has to do with vision, so another could not be done. I am still doing business with Yale Neurology, however. My Doctor suggested the Epidiolex,because it was successful on people like me, Intractable. In combination with other meds. I need to watch Triggers, though.
I am glad you found a doctor willing to listen and work with you to get the right medication.
In my case, my epileptologist thought I had good control of my seizures but I wanted better or total control. I had to convince him I needed surgery. When I did convince him, we discussed the ups and downs. On the downside was the chance of having a stroke down the right side and losing eyesight from 12 o'clock to 2. On the upside was a 95% chance of better seizure control, 85% chance of total control ON meds and 70% chance of total control OFF meds. After a near fatal car accident, I was ready for anything. So I have the surgery, no stroke, no loss of vision and total control of seizures with no meds.
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