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A MyEpilepsyTeam Member asked a question 💭
Nevada City, CA
December 3, 2025
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A MyEpilepsyTeam Member

The VNS didn’t change my voice. But at the beginning it numbed my voice a little . But my Vocal cords adapted to it.

The DBS I never experienced and disturbance to my voice.

December 9, 2025
A MyEpilepsyTeam Member

I have DBS and My voice has never changed

December 9, 2025
MyEpilepsyTeam

What are people's experiences with the vagus nerve stimulator (VNS) for epilepsy?

Many MyEpilepsyTeam members have shared positive experiences with VNS therapy. One member mentioned their child has had a VNS for over seven years for drop seizures, and when they swipe the magnet, the seizures stop.

Another member shared that Show Full Answer

What are people's experiences with the vagus nerve stimulator (VNS) for epilepsy?

Many MyEpilepsyTeam members have shared positive experiences with VNS therapy. One member mentioned their child has had a VNS for over seven years for drop seizures, and when they swipe the magnet, the seizures stop.

Another member shared that since their VNS was inserted 12 years ago, their seizures have been controlled with checkups every six months.

Effectiveness varies but shows promise:

Research indicates that about half of people using VNS see their seizures decrease by at least 50 percent within the first two years. Benefits typically improve the longer you continue treatment, though it usually takes at least one year to see significant results.

How it works:

The device sends electrical pulses to the brain through the vagus nerve, typically for about 30 seconds every five minutes. You can swipe a special magnet over the device during a seizure to deliver extra stimulation that may prevent, shorten, or reduce severity.

Things to consider:

- It may take up to two years to become fully effective
- Side effects can include hoarseness, coughing, throat discomfort, or trouble swallowing
- It requires surgical implantation
- Most people continue taking seizure medications alongside VNS therapy

About 25 percent of people don't see improvement, but for many others, VNS provides meaningful seizure reduction.

December 3, 2025
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member

December 3, 2025
A MyEpilepsyTeam Member

With VNS definitely have voice changes but not the DBS

January 14

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