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Suggested one and decided to follow through it' or turned it' down, curious and wondering is all, myself I have had the brain surgery brought up by my medical center and my doc about the suggestion to me but I did consider it and other people's I told about it, but I don't think it is necessary for me to do, nothing against the medical system and personnel and the services and such etc, but I don't think it's needed as for my opinion and condition I have, I am ok with for the most part to… read more

November 4, 2025
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A MyEpilepsyTeam Member

You have to do what is right for you.

November 4, 2025
A MyEpilepsyTeam Member

When it comes to epilepsy the only treatment, I've only ever had is meds. I've had lots of testing over the years and been in out of hospital but meds is all I've ended up having.

November 4, 2025 (edited)
A MyEpilepsyTeam Member

for epilepsy I did everything available at the time the doctors suggested. The only treatment I denied was the Covid 19 shot. I am up to date with other vaccines suggested to me by my doctor.

November 4, 2025
MyEpilepsyTeam

How do you feel about considering or declining treatments for epilepsy, like surgery?

It sounds like you're navigating treatment decisions thoughtfully, which is really important. When doctors suggest brain surgery for epilepsy, it's typically considered after medications haven't provided adequate seizure control—usually Show Full Answer

How do you feel about considering or declining treatments for epilepsy, like surgery?

It sounds like you're navigating treatment decisions thoughtfully, which is really important. When doctors suggest brain surgery for epilepsy, it's typically considered after medications haven't provided adequate seizure control—usually after two to three medications haven't worked well.

It's completely valid to decline treatments if you feel your current management is working for you. Everyone's epilepsy experience is unique, and what's right for one person may not be necessary for another.

That said, if your seizures aren't well-controlled or if your quality of life is affected, it might be worth having an open conversation with your neurologist about all your options. Surgery can be life-changing for some people, while others do well managing with medications alone.

A MyEpilepsyTeam member shared their experience: "Since my VNS was inserted 12 years ago, my seizures have been controlled."

The key is staying informed, asking questions, and partnering with your healthcare team to make decisions that feel right for your specific situation. There's no one-size-fits-all approach to epilepsy treatment.

November 4, 2025
A MyEpilepsyTeam Member

I was really questioning the surgery prior to getting it and finally I decided to do it. Man oh man has it been a roller coaster, but it ended up working with so many positives that outweighed the negatives. Finally seizure free and only had 5 seizures ever since when I had missed doses.its a big choice to make for sure and struggle will come along with it after getting it, but if you go through the process correctly and allow God to lead you the way then it’s so worth it. My memory came back a lot more and I no longer have as much problems with that once I decided to fix my physical health, mental health, emotional health, and my walk with God. Much more to go and that’s part of our journey!

November 4, 2025

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