I fired my first neurology team for being dismissive and how they waffled back and forth about my questions regarding what deficits I might face as a result of a resection. I went with an epileptologist and haven't regretted it. No surgery needed, seizure-free since 2019.

Imagine if you hired a professional tile company to install a backsplash for your kitchen remodel. Your suggestions are dismissed, and once the issue is pressed you get an argument, or a passive aggressive attitude instead of answers to your questions. It's YOUR kitchen, it should be YOUR call! Sure, my mind can be changed given a reason that makes sense, but this "We're going to do this my way" from a contractor is something I won't accept.

I view doctors as medical contractors that are collecting my money for a professional service, just like the tile guy, but with much higher stakes. It's MY health! It's MY call! Proper answers to legitimate concerns are what I want. How else can I make an informed decision about something of this magnitude? Anything less and you're fired. They can get their Maserati payment from someone else.

No

There has been disagreements when speaking with neurologists about certain issues as I did not wish to make journey down the same rabbit hole as they. I took the time to listen to what they would like to do then proceeded to state how I felt if we moved forward going that direction. There were times the conversation has gotten frustrated on my part for not fully understanding the outcome at the end. There were other times of difficulty for the neurologist to view my point due to how I can't always explain things in exact detail.

My epilepsy is non surgical but I do feel that my neurologist didn’t listen and simply wanted to push pills on me. I have a more holistic philosophy and it was just dismissed as “you are going against my advice so I don’t need to see you”. I believe in healthy eating, exercise, stress management, acupuncture and all my doctor wanted is to drug me as if that’s the only option. I am now 20 months seizure free and 8 month medication free. I respect my medical team but I don’t think they realize the toll that side effects of these medications take on quality of life.