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A MyEpilepsyTeam Member asked a question 💭
Tarpon Springs, FL

When my daughter had grand Mal seizures she would have auras. She described them as a sentence in her head she didnt understand or a deja vu feeling. We used to think of them as a blessing before the grand Mal seizure because she never fell to the ground and hurt herself. Now after surgeries and a vns she has many auras and an actual seizure looks like a focal seizure with a post ictal phase of her losing time and memory. Her neurologist says these auras are a form of seizures
What do you… read more

September 2, 2025 (edited)
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A MyEpilepsyTeam Member

Every person reacts in a different way after having the VNS device implanted. Each of us have different types of seizures. I went from having grand mal to having complex partial because of the medication taken. There were many medications tried over the years that could not assist due to my being medication resistant so we moved forward with the VNS in 2008 after having a left Temporal Lobe resection in 1995.

The VNS has helped with seizure activity but what improved matters even more was having a Deep Brain Stimulator device implanted as of 2011 as after the settings were completed the seizure level changed and dropped. I am now having zero to three absence seizures a month. It has been a major improvement.

September 3, 2025
MyEpilepsyTeam

Yes, your daughter's neurologist is correct - auras are actually a type of focal aware seizure. While they can serve as helpful warning signs before tonic-clonic (grand mal) seizures, they are seizures themselves. They typically occur less than a minute before a more severe seizure might happen, and unlike tonic-clonic Show Full Answer

Yes, your daughter's neurologist is correct - auras are actually a type of focal aware seizure. While they can serve as helpful warning signs before tonic-clonic (grand mal) seizures, they are seizures themselves. They typically occur less than a minute before a more severe seizure might happen, and unlike tonic-clonic seizures, a person doesn't lose consciousness during an aura.

Common aura experiences include:
• Déjà vu feelings
• Unusual smells or tastes
• Intense emotions
• Visual disturbances
• Rising stomach sensations It's important to use auras as a warning sign to take safety precautions. Many people develop personal safety strategies when they experience an aura, such as finding a safe place to lie down or alerting someone nearby. Your daughter's experience of having time to prepare before a larger seizure is something many find helpful, even though the auras themselves are seizure activity.

September 2, 2025
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I have an RNS which records my brain activity 24/7. I write down the days and times of my auras. Doctors do usually find seizure activity where I had an aura even if I didn’t go into a complete seizure. Auras are simple focal seizures.

September 2, 2025 (edited)
A MyEpilepsyTeam Member

Good post and? I think it's dif per person and what other people's opinions about it, and the ai mentioned about it, but get peoples opinions here which is ok with that, but then go to your doc about the situation and condition you have at hand and go from there,, but good luck with that and the outcome with it, hang in there and try to stay pos,I I do and so can you my opinion

September 3, 2025

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