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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 10, 2025
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A MyEpilepsyTeam Member

I’m on disability and definitely helps especially when it comes to prescriptions and doctor appointments. I know some people get kicked off of SSDI for working and making more than the allowed amount of money they can make each month which is $1,350 per month

August 10, 2025
MyEpilepsyTeam

When applying for disability benefits with epilepsy, it's important to be thorough in documenting how your condition affects your daily life. Members suggest having your doctors clearly explain your diagnosis and its limitations on your ability to work.

Here are some key tips for applying and maintaining disability benefits Show Full Answer

When applying for disability benefits with epilepsy, it's important to be thorough in documenting how your condition affects your daily life. Members suggest having your doctors clearly explain your diagnosis and its limitations on your ability to work.

Here are some key tips for applying and maintaining disability benefits:
• Have detailed medical documentation
• Consider working with a lawyer to speed up the process
• Include a comprehensive letter explaining how epilepsy impacts all aspects of your life
• Keep your neurologist or doctor informed of all symptoms and challenges
• Document everything that's affecting your life due to epilepsy For international members, disability benefits vary by country. Many nations offer specific programs and support for people with epilepsy. It's recommended to research your country's specific disability programs and requirements to understand what benefits you may qualify for.

August 10, 2025
A MyEpilepsyTeam Member

I’m on disability and it really helps. But it’s no where near what I made while working. I went from over $6000 a month to getting just over $1200 a month, and with the cost of living here, it’s really tight. Prices are around 3x’s as much as what they should be, but being on disability really helps. I’m also on income support which pays all my utilities, so between the two ( and I own my own place) I can afford to live, and possibly go out maybe once every couple months or so, but I don’t, I put it towards other necessities

August 11, 2025
A MyEpilepsyTeam Member

The president signed something that kicked me off SSDI and I never even made $300 in a month.

August 10, 2025

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Clinton Township, MI