My parents just told me that since I was taken off of disability that they can’t afford me anymore. Now really is the time to think about suicide.
Answer Summary
Members rallied around a community member facing a disability benefits loss and suicidal thoughts, offering immediate emotional support,... Read more
@A MyEpilepsyTeam Member
Reading your post made me cry and mad.
First, you are NOT worthless. Please stop feeling that way about yourself because you have this condition. All of us who have this condition and other conditions are strong people because we are handling these conditions. People who talk about us and what happens to us are weak people in their body and mind because they would not be able to handle what we go through.
The SSI program was created to help people who need help giiving them that income so they a live, eat, go to doctors and get the medication they need to help control this condition.
Second, perhaps you should find another church and friends to be around if they are going to talk negatively about people who receive SSI, people who NEED the help. There are churches who show their sermons on the internet.
Third, you can work and still recieve SSI beneftis. You can actually receive Social Security benefits and receive SSI benefits.
Thinking you are worthless perhaps is causing you to feel depressed and feeling depression is a trigger to cause more seizures.
Stay with us on this webiste. You will learn alot, change how you feel about yourself, get encouragement and make some awesome friends.
You can alway speak to me.
I was living a successful life, working for an insurance company after purchasing my second house, and third car (I have never driven) was happy and had more plans for my life. I was fired from my job because I was an educated Afrian American woman born and raised in the North working in the South. Three months later I had two grand mall seizures on the same day, due to being depressed and unhappy. My heart stopped and I am still thankful for the medical teach who restarted my heart. I was on life support for three days and woke up not knowing what had happened to me and no medical person explained what had happeed to me.
I am here for you and I have that voice.
Michele
@A MyEpilepsyTeam Member worked for 26 years and than my seizures changed I woke up in the er after being at work numerous times. I was having 1 to 5 seizures a day and before that I was driving for 20 years completely under control. Needless to say I was put on . disability with my job as they tried combo after combo. I wanted to work and when I was on one kind I was doing better so I went back to work. I spent 2 days reading up on what I use to know was my job and than I tried to do my job and couldn't remember a thing I had read. My boss said she was pu/ing me on long-term disability and they were retiring me at 45. The company paid a company to get me my ssdi. I was depressed and saw a shrink to work through me not being able to work. I was still able to do things at home . I got a VNS put in and a new combo of meds from a new doctor. I still went to church and they were all very supportive of my situation. I had to quit the choir . But never did I think ivwas worthless or anything you described because you had to get on ssi. If you still feel that way I highly suggest you go get some counseling from a professional to help you deal with your emotions. You are in desperate need of help.
You referred to Footprints in the sand, that poem is very powerful.
I suggest get your neurologist or gp to write to the disability officer to explain your health issues with epilepsy ect to ensure that you get + entitled to disability benefit, I beg you 🙏 to not give up, Take care 🙏
@A MyEpilepsyTeam Member Dude Please don't give up! And especially don't give in to Donald trump's ridiculous and stupid government.
I totally agree with Jennifer. Stop it Sean! Our quality of life is hard and I think about suicide, but I’m trying to stay strong. I’ve had epilepsy for over 20 years!!!! Life is not easy, but let’s try to think positive.
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