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I've brought up the post here about it and seen a dif doc another time and said my med level was a little bit low, but she was not my regular doc I normally see, but I took what she said and didn't complain about it, but it hasn't happened since then, I do bring up anything that may be of a concern to my doc, but what I'm trying to say, it is kind of dif per person {doc) if it's not your regular one you see, I don't see it as a prob with me, but what do you think about this and such etc… read more
@A MyEpilepsyTeam Member, I am the same. The only difference is my regular doctor visits me and unless it is truly necessary, I only have phone appointment with my neurologist(only because I am almost 7 years seizure free). My regular doctor will take my blood and send it to ,y neurologist though.
I have one Dr. I visit for my Epilepsy. The other Dr.s that I visit only know of my condition. They don’t make the decision on what AED meds to put me. Nor do they look for treatments for my condition.
Usually they do see things differently. If youre seeing someone new, the first thing they want to do is push a new medication. I come right out and ask how will it affect my other meds
I recently had to change 2 of my 3 gp’s and I’ve never been happier!! They all know about my epilepsy but they don’t try to treat it. They will call my neurologist and ask if something they want to put me on will counteract with my epilepsy meds, but otherwise they just treat my other ailments and leave the epilepsy to the neurologist. And I had to change neurologist 6(?) yrs ago and he’s very blunt and to the point which I like. Don’t sugar coat it- just tell me what u think and be done with it. My neurologist was a little surprised when he couldn’t seem to find the words to tell me that I was suffering from and having PTSD seizures. It’s the first time I’ve seen him at a loss for words; so I blurted it out and u could see the relief come across his face. And then he said he wasn’t sure on how I would take it. I know that having PTSD isn’t something that most ppl would like to say that they have, but I was diagnosed way back b4 they thought that anyone other than soldiers returning from war would have. Where as my other drs thought I had it but weren’t willing to tell me. I found out that even my last ( and only) neurologist also said I had it, but never told me- but he did tell my gp’s who also didn’t want to tell me. So now that they all know that I knew about it; they are proactive in talking about it with me instead of just bringing it up at their meetings and conferences. They still discuss my case with others, but now they add that the patient is aware of the PTSD, and is taking measures to help herself out in that area
I would say a different doctor I was seeing besides my regular doctor probably would because they specialize in a different area of practicing medicine.
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