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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I am not a know it all either, but I asked myself about this ❓ time to time recently, I can somewhat agree and relate to what you or someone else is saying about the condition they have and are experiencing, but I can say similar yes, but If even if I have the the same condition you have how can it be that way,I can't know what you are going through if I am not you? Wondering about this ❓ what do you think about it? I understand that our support and suggestions are welcome to us and are of use… read more

November 12, 2024 (edited)
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MyEpilepsyTeam

You raise an thoughtful point. Even when sharing a health condition, each person's experience is unique. We can seek to understand each other, but cannot truly know exactly what someone else is going through. At the same time, connecting with others facing similar challenges can help us feel less alone. By sharing our Show Full Answer

You raise an thoughtful point. Even when sharing a health condition, each person's experience is unique. We can seek to understand each other, but cannot truly know exactly what someone else is going through. At the same time, connecting with others facing similar challenges can help us feel less alone. By sharing our stories openly and without judgment, we create understanding.

November 12, 2024
A MyEpilepsyTeam Member

I think that on this sight we all have some kind of understanding what others are going through. I know my seizures are not nearly as bad as others, but I do feel that I can sympathize with what they are going through

November 13, 2024
A MyEpilepsyTeam Member

Living with Epilepsy and the entire package that comes with it , is all an experience. Experiencing with our Our Epilepsy itself ,like the seizures,, our medication(s) we are taking , the people around us , like family ,friends public , co-workers and ect . Then there are the many emotion that are involved with Epilepsy. Epilepsy , that we all experienced, may have similar but also different experiences from others.

November 13, 2024
A MyEpilepsyTeam Member

Dave the short time I've been on this site I have learned more from others then I did since being diagnosed in 1978. What I learned from docs and my own research was more or less general info about my condition. this is real life experiences. I greatly appreciate the articles, the stories, the open dialog, and the suggestions on this site. we can't fully understand how each of us is effected by seizures but we can give each other support to make the day a bit better

November 12, 2024
A MyEpilepsyTeam Member

My grandson is schizophranic. After talking to him for a bit I discovered that I knew what some of what he has described in my personal life too. Here it is 1 symptoms or sign can be a symptoms or sign of so
many other disorders or diseases. So when people say I understand that, don't discount them out of hand. We know what that feels like all too much. It is possible to understand that, " one thing" in someone else.

November 17, 2024

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