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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
October 19, 2024
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A MyEpilepsyTeam Member

I was having them during my menstrual cycle. They didn't start then though. Mine started when I was a witness to a traumatic event. After a MRI and ECG, it was found that I had dead tissue in my left front temporal lobe.
The removal of that piece of my brain stopped the clusters of seizures, but seizures then began starting from the right temporal lobe.
I am now fitted with a VNS implant, because surgery was unable to change it. The VNS has become helpful. Because of this, my carer no longer lives with me, so my seizures are unable to be monitored.

October 21, 2024
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I have had continued to have seizures since hitting menopause. Although, though they are controlled, I do think that I am having them more frequently.

October 21, 2024
A MyEpilepsyTeam Member

Epilepsy started at 7. Catatonia started at menstrual session.

October 21, 2024
A MyEpilepsyTeam Member

Even though I am not having my menstrual anymore can I still have seizures?

October 19, 2024
MyEpilepsyTeam

Yes, it's possible for seizures to start when menstrual cycles begin. This is known as catamenial epilepsy, which affects about 42% of women with epilepsy. Catamenial epilepsy is linked to hormonal changes during the menstrual cycle, such as drops in progesterone or rises in estrogen, which can lower seizure threshold. The Show Full Answer

Yes, it's possible for seizures to start when menstrual cycles begin. This is known as catamenial epilepsy, which affects about 42% of women with epilepsy. Catamenial epilepsy is linked to hormonal changes during the menstrual cycle, such as drops in progesterone or rises in estrogen, which can lower seizure threshold. The most common times for catamenial seizures to occur are just before or during a period, or in the middle of the cycle during ovulation. Managing hormones through medications or lifestyle changes may help reduce seizures.

October 19, 2024

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