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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Know It’s Not Epilepsy Related I’m Sure But I Don’t Think Paranoid Is The Right Description??

A MyEpilepsyTeam Member asked a question 💭
Chorley, UK

Does anyone else when in a que in a shop and someone stands behind me i have turn my body side on and take few steps side ways or if i’m in a Cafe and it’s packed i would rather stand 15 minutes outside instead of being around a lot of people??? It’s like social anxiety but i’m not sure if thats the right way to describe it

September 27, 2024
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A MyEpilepsyTeam Member

Sounds like you have a form of claustrophobia when people are too close to you in line . Then there is Enochlophobia , phobia of being in crowds,

September 28, 2024
A MyEpilepsyTeam Member

I have social anxiety. If I’m with someone in a public place then I can deal with it better, otherwise I m off by myself. I’m very uncomfortable around people…that’s an understatement. They’ve done nothing, it’s me.

September 28, 2024
A MyEpilepsyTeam Member

It’s called agoraphobia, a fear of crowds and closeness of people. I know because I have it too, and I am currently working with a therapist on recognizing and regulating my reactions. For me it’s related to past traumatic events and painful experiences. But that includes the trauma experienced while seizing.

October 16, 2024
A MyEpilepsyTeam Member

Its not weird at all I usually either go outside and sit down or stand by myself

September 28, 2024
A MyEpilepsyTeam Member

Hi
I've had the same issue for a long time. Had a good doc (rare) explain that it's hypersensitivity to movement, noise, etc. It is also connected to the trauma of dealing with the shitshow of having a seizure in public. Basically ptsd.
I carry a tube with klonopin for these moments. Very dark sunglasses and earbuds help most.
I don't know for sure if it's the seizure disorder that's responsible. Appears to be related though.

September 27, 2024

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