Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question πŸ’­
Deal, UK

Joining my Epilepsy Team
made a change to my life
Making friends + talking
Helps me cope with strife
I give help and support πŸ™
To help when they feel fear
By giving advice or Idea's
You can ask a question
To help being a Epileptic
Get lots of hugs or help
Giving each other tips. XX

May 16, 2024
 · 
Reactions

Answer Summary

Members connected warmly over how joining My Epilepsy Team has transformed their lives, describing the community as a lifeline where they find... Read more

Members connected warmly over how joining My Epilepsy Team has transformed their lives, describing the community as a lifeline where they find understanding, friendship, and practical advice from people who truly get what living with epilepsy is like. Several members shared how the site helps them feel less alone, provides a safe space to ask questions and share experiences without fear of judgment or mockery (unlike the cruelty some face in daily life), and has introduced them to helpful resources like the RNS stimulator. A recurring theme was deep gratitude for the mutual support, with members describing the group as family and emphasizing how both giving and receiving help has made coping with epilepsy more manageable.

A MyEpilepsyTeam Member

I understand about the way others have been towards you, try to ignore them cause they don't know what they are talking about, only talk about epilepsy with people who understand or have it, I hope πŸ™ you have a nice future, Take care πŸ™

May 22, 2024
A MyEpilepsyTeam Member

This support group is amazing. I felt like I fit in immediately and am grateful for that πŸ™ πŸ™Œ πŸ’•

May 19, 2024
A MyEpilepsyTeam Member

Same. A lot of people help out here with the situations we are going through.

May 19, 2024
A MyEpilepsyTeam Member

I agree with you all, this is where we all understand each other, thanks for all your hugs and support we get and give everyone everyday, πŸ’œ

May 17, 2024
A MyEpilepsyTeam Member

I was so excited to find this group. It is nice to be able to connect with others who really understand epilepsy. Some of us have been battling a long time. I was diagnosed with epilepsy 30 years ago. Some folks who join this group are newly diagnosed or starting to make adjustments. I am always nervous about sharing my condition with people. For example, I have students who will joke around and mock seizures. Granted, I teach middle school and students that age will make very inappropriate comments and joke about things they do not understand--really about anything. I use it as an opportunity to explain seizures to them. I have some colleagues who know. I do not share my condition with students or parents--again, because of ignorance and cruelty.... It has been so nice to find a group that I can share with. Thanks for being there! Tomorrow is the last day of school!!!

May 21, 2024

Related Questions

View All
A MyEpilepsyTeam Member asked a question πŸ’­
Roachdale, IN

A MyEpilepsyTeam Member asked a question πŸ’­
Midland, MI

A MyEpilepsyTeam Member asked a question πŸ’­
Lewiston, ME

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In