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Thanks For All Members For Your Warm Welcome, I'm Blessed With 19 Yr Old Autistic Young Man With Focal Epilepsy, Trying To Gather Info

A MyEpilepsyTeam Member asked a question 💭

If anyone has been blessed with a kid with combo of autism and focal epilepsy, I would appreciate anything that could help, from meds to special epilepsy glasses, to what to avoid to trigger episodes. Thanks

posted April 1
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A MyEpilepsyTeam Member

Maintaining your med bars weekly it will be a lifetime habit, not a burden. , Hydration is a must I bought a Bitta pitcher for that purpose when was 22. Do your best to recognize stress and avoid it. ericthom3 Sleep Baby naps are important when you get older

posted April 1
A MyEpilepsyTeam Member

You & Your Son, ❤️💙Welcome To Our Team 💜 💜💜

posted April 2
A MyEpilepsyTeam Member

BRAND name Zeiss Z1 blue Lens glasses

Photo sensitivity glasses

posted April 1
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
Welcome to the Team. I started having focal seizures when I was 10 years old. For years I just took medication but when I was 17 I got a Vagus Nerve Stimulator (VNS). It turns on every 3 or 4 minutes and is supposed to stop a seizure from occurring. I didn’t have luck so now I have a Neurostimulator (RNS). Stress, depression, playing sports seemed to be when I would have more seizures.

posted April 1
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