Any Thoughts On "implanting Inhibitory Interneurons? I Also Have The Option Of Laser Thermal Ablation, And An Anterior Temporal Lobectomy. | MyEpilepsyTeam

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Any Thoughts On "implanting Inhibitory Interneurons? I Also Have The Option Of Laser Thermal Ablation, And An Anterior Temporal Lobectomy.
A MyEpilepsyTeam Member asked a question 💭

I have the option to be evaluated for a clinical trial. They would inject brain cells into my hippocampus. I would have to be on immunosuppressive medications for a year after. All three options are scary. But patching with stem cells seems like it might be the most rewarding.

posted March 17
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A MyEpilepsyTeam Member

I had brain surgery in 1990 and I was awake and talking to my doctor while he was operating on me so he knew what to take out and what to leave in. He found out that my speech was in the area that he was operating on. Today I'm able to talk.

posted March 19
A MyEpilepsyTeam Member

Had so many I pass out in exactly 10 minutes.

posted March 17
A MyEpilepsyTeam Member

I'm the opposite my seizures are less when sleeping. I pass out when I am awake and they trigger.

posted March 17
A MyEpilepsyTeam Member

I had 30-40 seizure events while over the course of 3 days while I was wired up for an EEG. Those were the mild ones I had hardly any idea I was having....I had a seizure right before I was wired up and on video too.. They can be somewhat mild when I am awake. They can also be quite violent. The ones in my sleep tend to be worse.

posted March 17
A MyEpilepsyTeam Member

I don't think I've heard of this. I have seen the new Lazer thing though which is basically just a temporal lobectomy done with a Lazer.

posted March 17

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