His Awaiting An Appointment For Vagal Nerve Procedure Has Anyone Had It Done And Does It Work | MyEpilepsyTeam

Connect with others who understand.

sign up Log in
Quick Links
Q&A Treatments A-Z Help Center Community guidelines Crisis Accessibility
Resources
Emotional Well-Being Epilepsy Information Epilepsy Symptoms Epilepsy Treatments Living with Epilepsy All Resources
About MyEpilepsyTeam
What is MyEpilepsyTeam Terms of use Privacy policy
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
His Awaiting An Appointment For Vagal Nerve Procedure Has Anyone Had It Done And Does It Work
A MyEpilepsyTeam Member asked a question 💭
posted March 13
•
Be the first to like/hug
A MyEpilepsyTeam Member

I got the Vagus Nerve Stimulator (VNS) when I was 17 years old. It turns on every 4 or 5 minutes and vibrates like crazy. It messed up my speech and tickled my throat to the point where I would cough. Eventually I got used to it. That is until they raised the power. Then it would drive me crazy again. We never saw any improvements in my seizures so I opted to have it removed. Now I have a Neurostimulator (RNS). It has a better outcome.

posted March 13
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , Our team member, @A MyEpilepsyTeam Member, felt the VNS wasn’t helping him much & so he had it removed & got the RNS. He could give you some info on his experience with both devices. Your friend in Texas, Becky

posted March 13
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , Our team member @A MyEpilepsyTeam Member use to have the VNS & he could share his experience with y’all. He felt it wasn’t helping much & so he got it out & got the RNS & he feels it’s reduced his seizures a little but he still has them. Good luck with the VNS. Your friend in Texas, Becky

posted March 13
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I chose to have my VNS completely removed when it didn’t help me. I could have just had it turned off too.

posted March 19
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member

My son got his DBS 8mos ago. We're still trialing different programs. His seizures actually got worse, but his neurologists think it's not related to the surgery, but the progression of his epilepsy.
His VNS is also still turned on. I think we'll leave it for now, I don't want his seizures to get even worse. Did they actually remove the vns, or just turn it off when you decided it wasn't helping your daughter?

posted March 19

Related content

View All
What Does VNS Mean?
A MyEpilepsyTeam Member asked a question 💭
Vagal Nerve Stimulation
A MyEpilepsyTeam Member asked a question 💭
Does Anyone Else Find If They Do Any Exercise Which Raises The Heart Rate To Quick They Start To Have Auras And Double Vision.
A MyEpilepsyTeam Member asked a question 💭
Stopping Seizures: Your Rescue Treatment Options
You to the Rescue! Giving Rescue Medicine for Seizure First Aid
4 Mood Disorders Associated With Epilepsy
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in