Talk to your Dr. About Refractery Epilepsy ( Resistant to the Medication ) . Your Doctor may try a few more before thinking of alternatives treatments

Im in the same situation. But I wasn’t pressured. I wanted my seizures controlled. When my Dr. Would bring up a medication and the side effect weren’t bad, I would try it.

After trying many time my Dr. Asked if I wanted to try the Left Temporal Lobe brain surgery ( 1998 ) . In help reduce my seizure frequency. The VNS in 2005 . It didn’t work well I still seizured a lot . In 2022 I had my DBS and still have it . I still have seizures, but it helped reduce my seizures by half ( that’s a plus for me )

I am very pleased you have a new neurologist now. It can take years to find the right meds though, it took me a long time also. Dont give up! I have found that aswell as meds, diet, sleep and being stressfree are major factors in helping to gain some relief too.

No, I was on my meds from my diagnosis at 7, and was put on Dilantin and phenobarbital the doc that was treating me gave, aft about 23 1/2 years later I found a new doc and she asks me what I was doing on the meds I was taking, she ended up switching my meds to the current ones I am on now, depakote and levetiracetam or keppra, I am ok with those and my new doc I have currently and been with her for a period of 5 yrs now, not a prob with her or anything else as for my condition I have, my seizures are more stable than before and happen time to time, but I have a few bad seizures once in a while, like today, I have a sore back, but I hang in there and try and stay pos, despite my condition I have, I also do my daily routine of prayer and bible study, that helps me even though of the condition I have and I am not perfect and do sin, but that is my answer to the question here.

Ditto, Kelly! 💜