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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question đź’­
St. John's, NL

I have been having intense overwhelming senses of fear (part of my Complex-Partial Seizures) that turn into Grand-Mal Seizures. I can't go to the hospital; I have been mistreated every time I went. Medical situations trigger Simple-Partial Seizures, which also turn into Grand-Mal Seizures. I can't even watch or read anything medical without this happening. Going to the hospital is also out of the question since medical professionals have made me feel worse, not better. I'm taking medical… read more

February 14, 2024
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A MyEpilepsyTeam Member

I have complex partials but they dont go to grand mals. In February I was in hospital 9 days being plugged into a camera and a chart that was reading me. Dr. took me off primidone and phenytoin. Put me on something else (🤔cant remember the name). I got shakey, loss appetite. Tried it for a week. Then I quit that pill and went back to my phenytoin and primidone. I also take gabapentin and clobazam.

April 30, 2024
A MyEpilepsyTeam Member

I also take clobazam and valporic acid (I dropped the Brivlera since it worsened my mental health). Clobazam doesn't work by itself; however, I find that cannabis (Indica Softgels with THC; CBD is useless) sometimes helps it work.

May 9, 2024 (edited)
A MyEpilepsyTeam Member

I have tonic-clonic seizures that turn into cluster seizures whenever I'm in the hospital. Well, not every time, give it up to the Drs. and Nurses who really want to be there! They make you feel terrible,
“Did you miss your meds again?, you've been doing drugs, what kind?, how long since you have slept?, are you hearing voices?, are you seeing things?…”WTH? It truly is a nightmare, you just had all of these horrible seizures, and you are not all there, your body is starting to ache, and you feel tired, and all of these questions are being thrown at you by people whom you don't even know.
🫣 Yes, I do.

February 14, 2024
A MyEpilepsyTeam Member

Very rarely. But if I ever have a Grand mal or tc this is how it happens. As my seizures are focal and very rarely focal to Tonic-clonic.

February 14, 2024

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