What Would Be The Best Piece Of Equipment To Detect And Alert Of Seizure While Falling Asleep/speeping ? | MyEpilepsyTeam

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What Would Be The Best Piece Of Equipment To Detect And Alert Of Seizure While Falling Asleep/speeping ?
A MyEpilepsyTeam Member asked a question 💭

So far, my daughter only has seizure when falling asleep.
However, her bedroom is no close to ours and as a teenager, she closes her door... most of the time ! 😉

posted February 4
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A MyEpilepsyTeam Member

We did this, but for Jeanne, I find it unreliable and stronly suspect that even if we caught one seizure, we missed.... some .... many .... ?

What about connected watch ? or some other specialized devices such as the embrace2 or the Sami Camera - any experience to share ?

posted February 4
A MyEpilepsyTeam Member

I started having seizures at 15 yrs. old in 93. The way my mom did it was kept next to my bed a baby monitor in the room. Also, a small bell on my finger of the side I have convolution! She didn't do that just for seizures. Also, to make sure I didn't sneak out while she was asleep. lol

posted February 4 (edited)
A MyEpilepsyTeam Member

I think that it's dif per person, I have not a use of one, i have not had any of my previous docs etc bring that up to me, I just seen my doc 2 days ago, I give her a estimate for how many seizures I have had, she is ok with that and so am I, I open with her and she is with me, I think that If she was to have some kind of improvement or advice concerning my health and well-being, she would say so and bring it to my attention. She is a good doc, my opinion

posted February 23

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