@A MyEpilepsyTeam Member The other thing is If your currently on a higher-level dosage and there is still a chance of it going up then you may have to come off it further down the track anyway as the dosage can only go so high. This is one of the reasons I had to change.

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A MyEpile...

When changing, yes I did all up it took about the months to fully adjust to it but I never had any tc seizures. Only Focal seizures. You would have some side effect increases either way but the chances of a major seizure happening is hard to judge.

Yes I have spoke to my neurologist and he has advised the medication change I wanted opinions or information from people who have been asked to come of something that kept them controlled for years at a time,

For me this is a big ask from my doctors and makes me question my future now

@A MyEpilepsyTeam Member Unfortunately when it comes to such a big decision that could have a massive impact on my epilepsy it does dictate this…. But not the rest of my life I do agree

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A MyEpile...

HollyJane
It's always a scarry risk/gamble to change something that is working. But sometimes the side effects are worse than what good the med is giving. Looking at your timeline, I'm guessing that your seizures are pretty much under control? Only your doc can make changes in your meds. But what prompted me to reply was your statement that the thought of changing is making you not want to have kids. Please Holly, don't let seizures take over. I felt the same way, so I didn't have kids. Now when family gets together, I get to play with my great-nephews and great-niece. And all the while I have time to think about what I missed out on. Please Holly, don't let seizures dictate your life to you.