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Travelling With Epilepsy
A MyEpilepsyTeam Member asked a question 💭

Travelling with epilepsy. Any tips, suggestions on types of holidays like cruises? How do you go with travel insurance? Also how do you go with traveling when you can’t drive?

posted January 24
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A MyEpilepsyTeam Member

I always travel with my dad I put my meds in a medicine container in a zip lock bag then have a purse that has my ID money and other things. Then bring my stuffed aminal and phone charger and phone then anything else I'll either stop at Walmart for.

posted January 24
A MyEpilepsyTeam Member

When I travelled to Europe over ten years ago (I didn’t travel on my own and I would advise to travel with another person/s)
I had a letter from my doctor on hand at all times which listed my condition and all medications 💊. I was only stopped once in customs about the meds and showed them the letter which they accepted. I’m pretty sure travel insurance was okay as it only covers the loss of baggage and valuables ?.
Happy travels 🤗

posted February 21
A MyEpilepsyTeam Member

this is a loaded question with many answers. city or country? transportation or not? all alone or in a group? ect. there are 40+ types of epilepsy, i have food seizures... another has photosentativaty... and another has injury (car crash/tramatic/tumer) and with that is different ways to handle it. this is my experence with my food seizures...
get a bag or cooler and put some food items in it. excample is gf bread and peanut butter and some jelly... hard boiled eggs... some veggies and gf dip.
on to your questions... any tips? ... before you leave, update your med id... get your bracelets/necklaces/keychains/ect... count how much you are leaveing for and add med and if you are out tell your dr to get more... if you are getting weed/cbd label um with a 'warning epilepsy' label. suggestions? like i said earlyer... depends on the epilepsy... i take food with me. travel insurance? depends on the trip... most trips have there own travel insurence... but some don't. check what thay have and add if need to. driving? there is 2 ways... traviling alone and in groups/family. group/family is easy... get there car. maybe pitch it for gas money. if your driving alone... get a trusted friend/family that is near bye to drive you. get um gas money. if you don't have a friend/family near by, get a taxi or bus or something to get from point a to point b.

posted January 25
A MyEpilepsyTeam Member

All the best with your plans. I hope it all works out.

posted January 27
A MyEpilepsyTeam Member

I'm flying again for the first time since the diagnosis in October 23. I got an okay from my neurologist and a doctor's letter saying that I was fit enough for a flight of up to 4 hours. I'm away for 4 weeks so I've packed enough meds for 5 weeks plus my rescue meds just in case. I got myself a waterproof bracelet with Epileptic engraved on it and I'm only going to swim (in the sea) with my husband and wearing an inflatable rescue belt. Travel insurance is also an obligation for me. ☺️

posted January 25

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