Knowledge Of Having Seizures | MyEpilepsyTeam

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Knowledge Of Having Seizures
A MyEpilepsyTeam Member asked a question 💭

What have you learned about having or living with someone that has seizures of anytype

posted January 22
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A MyEpilepsyTeam Member

I have had my condition and have had it since I was diagnosed with at 7, I didn't know what I had at first, I had at age 6 and didn't let my parents know about, my mom had had as well, I didn't want to know how to bring that to her attention, I wanted to but didn't know how, I didn't want scare her, but she found out about it, they took me to er and was diagnosed with, I am glad I know what I am dealing with, at first not knowing is not a good thing, but after that and all these years I come along way learning about my condition of epilepsy, I like reading and information from sites like this and my doc and the med field etc, the epilepsy has has been around for about 3000 years ago, there is no known cure for yet, but I am ok with my condition and am still learning about it, we made some progress medical and such which is good, but not a cure for. I like sharing what I know for others and like their replies they have, it helps, my opinion

posted January 22
A MyEpilepsyTeam Member

I have learned a number of facts about information epilepsy, thing that are true and false,-some people still believe a person that has epilepsy can swallow their tongue. Some of the challenges or roadblocks that exist can be destroyed, ex. going to college and graduating & listening to the experts not rumors.

posted January 31
A MyEpilepsyTeam Member

I never know unless someone is around, knows / understands epilepsy & works me

posted January 24
A MyEpilepsyTeam Member

Unfortunately he don’t really know when one is coming on most of the time.

posted January 23
A MyEpilepsyTeam Member

I would know a seizure was coming on and I started talking or singing. This helped me out about 90% of the time.

posted January 22

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