Mine have never been under control either (44 years now, I was diagnosed at 15 months in December 1979), I have Nocturnal, Absence, Tonic Clonic & Generalised Focal seizures and because they’re uncontrollable, they call them “refractory seizures”.
I wear a medic alert bracelet wherever I go.

@A MyEpilepsyTeam Member
Have you considered getting a pet? I live alone. With two dogs! Really helps. Here’s Baron!

Mentioned Users

A MyEpile...

Hi Ann, I read this and I understand your concerns. I live alone and am concerned as well I live in a senior complex. Living out in the boondocks would be difficult. Would a home base where you would have a watch that you can use to get help if you need it. I have a service so I can get help. They call a fried or 911. I can get more detailed tomorrow information if you're interested. A fried on this site told me about!

Yes, I have a pet. My family is around a majority of the time. My son has lots of extracurricular things and I get anxiety with just the thought of being alone during an episode. Unfortunately I live in the boondocks so I don't even have neighbors. I have called friends on the phone while being alone and it helps some. I get auras a lot, especially lately 😕