Has Anyone Successfully Got Disability For Their Epilepsy Been Having Seizures For 12 Yrs Now And Medication Isn’t Working Still Having Alot | MyEpilepsyTe

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Has Anyone Successfully Got Disability For Their Epilepsy Been Having Seizures For 12 Yrs Now And Medication Isn’t Working Still Having Alot
A MyEpilepsyTeam Member asked a question 💭

They have only figure out temporal lobes epilepsy it’s coming mainly from my left side and they are generalized tonic clonic seizures.

posted December 20, 2023
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A MyEpilepsyTeam Member

Hang in there and try and stay pos

posted December 22, 2023
A MyEpilepsyTeam Member

Oh ok I started having seizures at 16 and I’m 28 and still having them now and it’s hard for me to keep a job with the tonic clonic seizures unfortunately

posted December 20, 2023
A MyEpilepsyTeam Member

Keep good records of dates of seizures, call your doctor when you have one and ask them to document it in your file, keep up on neurology appts and get their records, primary doc and hospital records, med changes, any psychological or vocational rehab notes and records too. See if you can be trained to do any other kind of job because Disability will say you can at first usually, so if you have all that done, you can move forward quickly. From our appeal to hearing date has only been 6 months, but it was almost a year before they moved on it at first. We called and asked status, "pending", then denial-but your inquiry gets them moving usually.

posted 4 days ago
A MyEpilepsyTeam Member

Trying now. Pray for me everyone please

posted 4 days ago
A MyEpilepsyTeam Member

We are awaiting our 35 yr old son's disability hearing in June after a denial by mail. Have jumped through alot of hoops, tests, voc rehab. Praying it comes through so he can build up a small savings for expenses, partly support himself but most of all-have access to the medical care he NEEDS...

posted 5 days ago

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