Anyone With Right Temporal Lobectomy | MyEpilepsyTeam

Connect with others who understand.

sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Anyone With Right Temporal Lobectomy
A MyEpilepsyTeam Member asked a question 💭

In January I am scheduled to have a temporal lobectomy on my right hand side I was wondering who all has had this procedure done before and how it went

posted November 27, 2023
View reactions
A MyEpilepsyTeam Member

I hate to tell you that because yours is scheduled. I went to a great hospital. Apparently, he was the best neurosurgeon in the area, but all I have are scars and screwed up eyesight. Then I was in the hospital for a month afterward. I had no worries beforehand. I'm just being honest. It's worked for many others though. ❤️

posted November 28, 2023
A MyEpilepsyTeam Member

I was really surprised, you know ‘brain surgery’ is always thought of as such a daring thing. But I was out of the hospital in four days and recovering at home only until I had healed enough to have the staples removed. Which was only a few weeks. 🤕 Twenty years later, I’m sure they’ve made some improvements to the surgery. Maybe fewer staples (I had 69).
One weird thing that I’ve forgotten to tell anyone, when I had my first brain freeze from eating ice cream, I was completely confused. It felt very different! My wife and I decided that this was due to nerves being cut-but there’s no scientific confirmation for that.

posted November 27, 2023
A MyEpilepsyTeam Member

I had it in 2002, so much has changed since then. I was 32 at the time. I had great success as far as complex partial seizures go. I still take Tegretol and recently had my first tonic-clonic in 20 years, but I drove from 2002 - 2019 and that was wonderful! I had my surgery in January, so that’s a good month for it. Best of Luck!!

posted November 27, 2023
A MyEpilepsyTeam Member

Thank you! Also if it makes you feel any better my neuro said the exact same thing. I had an eeg in 2016 and 1 seizure was on the left side so they shut operation down. Only in September did they catch all coming from the right side and agree to surgery

posted November 29, 2023
A MyEpilepsyTeam Member

I've been to 3 brain surgeons and the front left side can't be operated on as they say that there is a 75% chance of the surgery killing me or leaving me brain dead the rest of my life. There's still a chance of operating one day. Good luck..

posted November 28, 2023

Related content

View All
Hi Have Any Of You Guys Had Temporal Lobectomy Surgery? If So What Is Outcome And Was It Successful
A MyEpilepsyTeam Member asked a question 💭
With The Medication We Have To Take, Has Anybody Had Side Effects Affecting Their Sex Drive?
A MyEpilepsyTeam Member asked a question 💭
Temporal Lobectomy
A MyEpilepsyTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in