When I went to EEG Long-Term Monitoring (would also do MEG 3 months later), they determined that I did in fact have nocturnal seizures too, all the seizures that I had during the week that I was there were partial seizures, but they showed that while most were in my right frontal lobe, there were two (got a correction on what I remembered being told as it being one in the report from my recent in-person memory test) in my left frontal lobe. This fact eliminated me as a candidate for surgery. The neurological committee was talking about RNS or VNS (not sure which) in 2022, but they were silenced when the addition of Xcopri (the newest approved by the ADA at that time) was added to the other three I was on and I had my last seizure on April 25, 2022.
After I was a year of being seizure free (verified by an ambulatory EEG with me for 48 hours to make sure there were no nocturnal seizures also), my neurologist slowly started removing one of the other 3. And recently he has been working me off of another -- I will be completely off of it at the end of the week. Thus, I am Xcopri and a generic for of Keppra XR.

@A MyEpilepsyTeam Member
Good luck with your SEEG. I have had an SEEG where they drilled holes in my head. I didn’t have any seizures though.

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A MyEpile...

@A MyEpilepsyTeam Member
I got the VNS before I got the RNS so the doctors were probably talking about the VNS.

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A MyEpile...

I've already had two craniotomies. Both for a partial resection of the left temporal lobe.

However, it is believed that my epilepsy is actually in the insular-opercular region of my brain. I'm not a doctor but I'm guessing it would not be a craniotomy a third time around since it is so deep in the brain.

A MEG can pick up that deep in the brain, but my doctor said an SEEG is most likely needed because they need to find the exact location and make sure they take the right part out. The insula is so connected to the brain that I have all different kinds of symptoms.

I did something similar to that, the Depth Electrodes Test. The electrodes inside my brain located where my seizures were coming from. That test gave me answers, I have seizures coming from both sides of my brain. No more brain surgery is possible. So I had the vagus nerve stimulator implanted inside me, that has helped.