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Same Experience
A MyEpilepsyTeam Member asked a question 💭

Does anyone wake up very confused and emotional? I woke up this morning dizzy. I have been having a hard time. Very confused and emotional. Struggling trying to do almost every thing. Like trying to focus and memory. Trying to use my phone. Having a hard time talking. Went to the store couldn't talk to cashier. If I would have I would of starting crying. I just need people to talk to that understand what it is like to have epilepsy.

posted June 6, 2023
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A MyEpilepsyTeam Member

My dog helps and knows when they are about to happen

posted June 7, 2023
A MyEpilepsyTeam Member

➡️Usually when I wake up confused and/or angry already, it's a sign I've had a nocturnal seizure, or that I am overwhelmed. Often pre & post seizure I'll have lots of anxiety, grouchiness, and depression... All signs of seizure time coming soon.

➡️I'll have a more difficult time finding my words when talking as well. This is called Aphasia and is said to get worse the longer seizures occur. I hate being at a register or even worse, face to face with a doctor, and then you can't talk cause there are no words coming to mind.

➡️The emotional flux can be caused by something called Pseudo-bulbar affect which causes uncontrolled, unregulated, and disproportional emotional response to triggers.

➡️I forget how to operate my phone a lot. Take a deep breath several times and if you can, close your eyes while doing it. Vision uses 30% of our conciseness in order to operate. So just closing your eyes without falling asleep will greatly relieve some of the mental stressors happening at a given time.

➡️I'm not a doctor, but take a couple hits of some good Cannabis if you are a connoisseur, and really focus on relaxing with that mighty exhale. Even without the herb, deep breathing can really help to calm and relax a central nervous system. I believe all epileptics should practice deep breathing as they are falling asleep

⚠️Above any & all... remember to be kind and forgiving to yourself. Relax in knowing that you are different than the mainstream, and therefor you will need different approaches to everyday-Life things and be willing to treat yourself respectively

❤️Love your Self

posted June 7, 2023
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member,
I can’t speak for anyone else, except myself.
I go through the same thing most everyday. My moods change often and sometimes more than twice in a day. My emotions are everywhere most days. I don’t normally speak about things like this to people, but I do keep them journaled as you do.
I don’t know if it’s a seizure or not for myself. If it is a seizure, then I am in bad trouble. Because I have emotional mood changes at least 4 to 5 times a day. It’s almost like being bipolar. I know some people who are bipolar. Sometimes they ask if I am, because my mood changes often.
Definitely tell your doctor and neurologist about it. I personally am looking for new Doctors and Neurologist @ this time.
You are so brave.

posted June 11, 2023 (edited)
A MyEpilepsyTeam Member

Sounds great, on the Dr.'s visit. Let me know how things turn out. Wishing the best on how the visit goes.

posted June 6, 2023
A MyEpilepsyTeam Member

Joan
You are super keeping notes! My Epileptologist said keep a calendar which I use my phone. She says be specific!
I have walking sz. Walkout store w/ clothes I didn’t have a chance to try on! I have crazy stories. I also have other types. When hospitalized tied to bed via apron!
Any changes. Right it down could be the key of problem!

posted June 6, 2023

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