Has Anyone Taken Zonegran? | MyEpilepsyTeam

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Has Anyone Taken Zonegran?
A MyEpilepsyTeam Member asked a question 💭

This medicine has so many side effects, with eye pain being one that I am terrified of because the medicine can cause permanent vision loss! I swear this medicine is going to turn me into a hypochondriac. Every odd feeling I have I check the side effects.

Now I’m trying to figure out what constitutes as eye pain. Is the eye pain in the eye and or around the eye. I do have an oddfeeling in my brow area but I wouldn’t consider it pain. The side effects are just worrisome to me

posted May 26, 2023
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A MyEpilepsyTeam Member

I take Zonisamide, which is the one Patricia mentioned. It makes me very sleepy and I got my neurologist to switch my doses to the evening. Even though I take it during the day I will get sleep at times during the day too.

posted May 28, 2023
A MyEpilepsyTeam Member

I took it a long time ago and I don’t remember if I had eye pain but sometimes we can have eye pain if it’s cluster headaches. I get them now I feel like my eye is bruised but it’s not and it feels like the pain is behind the eye. Zonegran is used to control cluster headaches but maybe because you are taking them for seizures the headaches are side effect.

posted May 27, 2023
A MyEpilepsyTeam Member

I was sleepy initially with Zonegran! It became my base medication until a brand new drug Xcopri started to work great!

posted May 26, 2023
A MyEpilepsyTeam Member

I took Zonegran a long time ago and I don’t remember having any side effects from it.

posted May 26, 2023
A MyEpilepsyTeam Member

I take the Generic form Zonisamide and also use Xcopri

posted May 27, 2023

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