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Is There Anyone Who Can View A Video?
It was my son having, what I think is a seizure, and I am getting push back saying he is in pain. Background: has CP and has had seizures all his life. He is having increased seizures, mostly focal and some/rare tonic clonic. While there might be pain I know it isn’t it. Getting desperate.
Often I have seen several videos of some STRONG enough to have themselves recorded during seizures! My daughters did until they KNEW I was sick! They deleted the videos & talk now! Record what you can & verify the stressful times 🙏🏾🙏🏾🙏🏾
I one of the times I was at the hospital for an inpatient EEG. On my release date , I asked if I could have a recording during my stay. They gave me a video of my worse seizure.
I watched when I got home . I thought to myself that , the person wasn’t me.but I Lao knew that ws me. It was my first time seeing my self having a big convulsive seizure. There were 5or 6 Hospital staff surrounding me. The arm gates were up , but if the hospital staff weren’t around me,I probably still would have rolled off the bed. . Well that’s what it looked when watching the video
Wow I never thought to ask for video of eeg when I had seizures during the 5 day eeg. I have to schedule another so I will definitely ask
@A MyEpilepsyTeam Member, no worries. I am not sure how that works. But you may have a point in that some caregiver's members may know what seizure it is.
Thanks Rusti. perhaps I wasn’t clear. I have a video of him having a seizure but wondering if I could post or if there is a place to post.
Can You Post A Video Of Your Seizure?
Last Night I Watched A Video About Hilary Clinton's Seizures & The Dr. Who Shadows Her. The Video Isn't There Today.
Is There A Meeting Site For People With Epilepsy Like A Video Group Discussion ?
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