I have been diagnosed with epilepsy, yes I know about seizures and SPS and seizures, should do I have lived with it for almost 20 years, mines are not controlled I wish they were.

I am working with SEER research team

After speaking to SEER I have asked them to provide more information from what they collect from my Fitbit they are looking into this, but it will take time….

@DavidNapier
I have had seizures for 31 years. I have been on every medication and had several surgeries. I tried the VNS and now have the RNS. After all these years and surgeries doctors have said there’s no solution. So I have uncontrolled epilepsy.

@A MyEpilepsyTeam Member
I recently was told that I was walking like a zombie during a seizure. They said I took a step with my left foot and drug my right foot over and over

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A MyEpile...