Thank you so much for your detailed response. God bless!

I have had RNS for 5 years come May. My seizures are down it took a while but they are down. Mine start from 2 different spots so makes it a little more challenging. It's worth it

Thank you @A MyEpilepsyTeam Member . I’m praying for less seizures . So far, so good. Still have seizures but so far it’s been less amounts.

My wife and I are both noticing a difference.

In 2005 I had the VNS implant . It didn’t work well for me .
August of Last year I had the DBS implant put in. So far the DBS seem to be working well. I still have seizures, but not as many seizures, I use to have .

@A MyEpilepsyTeam Member
I have had the Neurostimulator (RNS) for years. I had several surgical EEG’s where I didn’t have a seizure so they were a waste. That's the main reason I chose to get the RNS. It not only is supposed to help slow down your seizures but it also records your brain activity 24/7. When I have a seizure someone will touch my head with a magnet and that puts a mark on the spot I had a seizure. Every night, I turn on the RNS monitor and put a wand on my head. It will download all my brain activity for the day. When it’s complete I hit send and all of the info is sent to my doctors. When I go see my doctors we look at their monitor and can see everywhere I had a seizure and everywhere a magnet was used. Most of the lines are smooth but when we go to a spot I had a seizure the lines are bouncy ——wwww——. So they write down all the info they gathered. Since I still have seizures doctors have raised the amps on my RNS a few times. To do that they just place a wand on my head and do some adjusting on their computer. I never feel any vibrations from the RNS.

Mentioned Users

A MyEpile...