Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign up Log in
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Osteopenia And Possible Med Change

A MyEpilepsyTeam Member asked a question πŸ’­
Pittsburgh, PA

I was diagnosed earlier this week (2-14-2023) with ostopenia in my left leg and hip. I am concerned that this condition may be a side effect of the Dilantin/phenytoin that I take. I'm wondering if I should switch to another seizure med. I know you're not doctors but has anybody else encountered this problem? What action was taken by you and your doctors?
PS I know ostopenia isn't reversible. I'd just like to perhaps lessen the ongoing damage.
Thanks in advance.
Peggy Shore

February 18, 2023 (edited)
β€’
View reactions
A MyEpilepsyTeam Member

Peggy theres no need to be sorry, i was prescribed and seemingly abandoned on Phenytoin for 30 years.

February 18, 2023
A MyEpilepsyTeam Member

You like to see Prolia injections for strengthening the bones . Every 6 months

February 18, 2023 (edited)
A MyEpilepsyTeam Member

Hey wait one minite because we don't fully know the situation,eg Phenytoin for me controlled my seizures due to being very effective. The problem for me was a breakdown in communication which did result in my toxic levels, which in turn is poisonous and harmful. Monitor Phenytoin levels or you may regret it, i believe it should between 10-20 mg/L mine was well out of this fine range and thats one the problems its-a-fine-range.
I have tried some other medications and I will have to try more, I wish you good health.

February 19, 2023
A MyEpilepsyTeam Member

Physical Therapy is strenuous. I came home and took a 3 or 4 hour nap...lost track.
3lb ankle weights are a lot for this skinny body. When they work me up to 5lbs I don't know how I'll do.

February 23, 2023
A MyEpilepsyTeam Member

I have begun Physical Therapy 2x per week as of yesterday. Thanks to prednisone πŸ˜‰it didn't hurt too badly.

February 22, 2023

Related content

View All

Has Anyone’s Doctors Suggested They Take Prenatal Vitamins?

A MyEpilepsyTeam Member asked a question πŸ’­
Homer, AK

What Are The Side Effects Of Depakote?

A MyEpilepsyTeam Member asked a question πŸ’­
Ocala, FL

Do Antiseizure Meds Cause Painful Bones?

A MyEpilepsyTeam Member asked a question πŸ’­
Bulawayo, Zimbabwe