Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign up Log in
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Heard Of Or Had A Vagues Nerve Stimulation Or Vns Put In? Do You Know Anything About It?if It Worked?

A MyEpilepsyTeam Member asked a question 💭
Reno, NV
January 21, 2023
View reactions
A MyEpilepsyTeam Member

A friend who has more seizures and generalized the doctor had it to go off every 8min. I have c/p and s/p it goes off every 0.17 seconds. I don't understand

February 7, 2023
A MyEpilepsyTeam Member

IN 2005 I had my VNS put in. It didn’t work well on me. My Dr. Kept adjusting it during my appointments . My seizures patterns never changed. It lasted for about 5 yrs, when the stimulator died.

Keep in mind that just because it didn’t work for me, doesn’t mean it’s not going to work for you.

February 7, 2023
A MyEpilepsyTeam Member

It helped a lot and there are many settings now. Nocternal Seizures, Time its more possible to have one have hire stimulation, aspire automanically goes off if the heart rate changes and something else. Mine goes off every .17 seconds and a 0.6 break

February 6, 2023
A MyEpilepsyTeam Member

I don’t know if I would get one since I have breakthrough seizures. I think you’re right, I will talk to my neurologist

January 22, 2023
A MyEpilepsyTeam Member

Yes I’ve had it done in 2005. It didn’t work well for me. That doesn’t mean it won’t work for you, if that’s what you and your Dr. Are planning.

January 22, 2023

Related content

View All

People On Onfi (clobazam) Do You Have Joint Pain?

A MyEpilepsyTeam Member asked a question 💭
Pittsburgh, PA

Anyone Else Heard Or Know About: MIND RENEURAL For Help With Controlling Seizures?

A MyEpilepsyTeam Member asked a question 💭
Colorado Springs, CO

D Goodmorning. (Ith Ink?) Does Anyone In Our Community Have Both A VNS And A DBS Implant. My Son Is Schedule To Have A DBS In 25 Days

A MyEpilepsyTeam Member asked a question 💭
St Augustine, FL