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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Any Problems From Use Of Antiepileptics And Low Rbc Anemia?

A MyEpilepsyTeam Member asked a question πŸ’­
North Platte, NE

Just found out I am anemic, very low red blood cell count. The thoughts from Dr. is that chronic use of antiepileptics (40 years worth) is the cause. I hadn't been made aware of this possible side effect before.

December 27, 2022
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A MyEpilepsyTeam Member

I agree. I have been on anticonvulsant medication since 1974 and I was told by my Neurologist that I would have to have blood work every 6 months until I turned 26. At age 27 I was told that since my seizures were controlled I could start getting blood work done annually unless my seizures returned. I was able to get this done by my primary doctor and asked him to share the bloodwork results with my Neurologist to save on the medical cost. I have learned that there are some things that have to be requested to be tested for in bloodwork such as testosterone levels. The Depakene that I was on depleted my naturally produced testosterone to the point I had to give myself weekly injections to fight off depression and fatique.

December 27, 2022
A MyEpilepsyTeam Member

Sorry to hear this Bob, i believe Anticonvulsant medication is a amazingly powerful tool, and blood counts etc should be vigorously checked on a regular basis.
I was on a medication for 30 years (now changed) i feel like its taken away part of my life....because i didn't have checks.

December 27, 2022
A MyEpilepsyTeam Member

I run my own landscape business. I started to feel tired at the end of the season and realized that my iron level was low. Started taking ferritin and it made a huge difference

December 29, 2022

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