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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anybody Have Occipital Focal Seizures And Tend To See Coloured Flashing Lights Or Visual Hallucinations On A Daily Basis?

A MyEpilepsyTeam Member asked a question πŸ’­
Reading, MA

Please do answer as it would be very helpful if you can tell me your experience!! And happy epilepsy awareness month πŸ’œπŸ’œπŸ’œπŸ’œ

November 20, 2022
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A MyEpilepsyTeam Member

You’re welcome, @A MyEpilepsyTeam Member .
Have a good Thanksgiving Thursday.

November 23, 2022 (edited)
A MyEpilepsyTeam Member

Shaking and jerking can be a symptom to a Tonic Clonic. Then again there are other seizure types, that have s similar symptoms. Tonic Clonics have big convulsions, while shaking and jerking.

November 22, 2022
A MyEpilepsyTeam Member

Thank you, you are awesome. Thats exactly what I do! Its a little scary. The keppra was working for a long time and then it seemed I had adjusted to it and the seizures came back. So frustrating. Im so glad you can relate (while I'm still very sorry that you have to go through it too) its a bummer, right?

November 21, 2022
A MyEpilepsyTeam Member

When I first was diagnosed with epilepsy I had flashing coloured lights as an aura. It could be very scary for a child.
Since then I've had the trigger in my occipital lobe removed. It was very successful.πŸ‘
I do still have seizures, but they originate from other trigger points that can not be removed safely.πŸ€—
Instead of having the bright colour aura during every seizure (3-5/month); I only have them once every 3-4 months.

November 20, 2022
A MyEpilepsyTeam Member

I black out, I lose my vision and lose control of my muscles and I start to see shadows. Its really weird its the onset of me going down. But I start hearing things too. I'm sorry you struggle with this too. I try to sit down, I hope you have a better day.

November 20, 2022

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