I was a Rig Manger for Nabors drilling we hid seizures for few months after we figured out mine were not going to be controlled I had to go on disablity. Since then I got the RNS they slowed down some about 4-7 a month. So I decided ok maybe part time work some where called my disablity company bad idea ened up having to get a lawyer they said part time equals full time was a big mess. Anyway while i was looking i found really nothing you say epilipsey to someone they think grad mals. I was disappointed how discriminated pepole with seizures are. I mean no one would even talk to me. For now I'm on disablity just sucks sitting around house all day trying to find something to do. Transportation would be my big problem. I know 2 other adults with uncontrolled seizures neither of them work. I have read some story's where some people work but not many.

I never really had a problem holding down a job as I only had one and the other ones I had were temporary ones while I was in high school. I was a welder in the automotive industry for I don't know haw many years excelling in mig and tig and spot and robotic and cutting torches and being a weld tech until I suffered a bad sezuire on the job and I was wheeled out of work on a gurney to a ambulance waiting outside and that was the beginning to my journey to being put on permanent disability. It doesn't pay but I found myself now at home working in the advocacy field for epilepsy and the rights to use Marijuana as a medical medication.

When I bought my own place I made sure it had a rental unit. My husband works but if It's always been hard for me to have a job. The rental units that I have are my, "job". That way... even if I've had the worst seizure month of the year, I can stay at home... still with an income.

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So I could go on and on and sound whinier and whinier but I'm guessing that you get the point. And once again sorry about the long post but it's a bad brain day and my depression is running rampant right now. Oh and yes I take pills for my depression too but the Wellbutrin mainly keeps my brain working at all. Without it I become a total mess and can't figure out, well I won't even go there.

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A MyEpile...

@A MyEpilepsyTeam Member, well when they test me that they keep saying that kind of memory is weird at best. lol Their explanation is "your memory tends to get a lot better the more that you are told something, however as you and I both know most people in life don't repeat themselves every time they're saying something." LOL So let me get this straight doc if I'm listening to someone that's a parrot I'm fine but if not it tends to get a little more shaky?
I've also realized lately that when I took that worthless four hour test they didn't really test for things such as "uh what did I just do an hour ago?" Of course I guess that's something that's a tad bit more hard to test for.
So here's a for instance: My wife and I just went to New Orleans for a 7 night vacation and I believe all but one night we ate at a different place. I personally would find it all but impossible to tell you which nights we ate where??? What days we did what, and when we did and didn't go somewhere at night for entertainment? And we just got home yesterday. Now come the end of the week it will probably be all but gone and by next week I'll have forgotten places completely until she starts to go over them with me. I sitting here right now thinking fairly hard and I'm only coming up with five of the seven when I think about it fairly hard and I feel like most of them are the ones you kind of cheat at. For instance one was a place that we had been to the last time and we were all but sure we were going there again, one was right across from our hotel, one we went to twice, and one was a freaking boat that we were on all evening. LOL I just came up with the last nights place and once again it was a repeat of the last two times. Of course names would be totally impossible, except for The Gumbo Shop for very obvious reasons lol. No clue what the boat was called, the airboat trips were called and we went twice, or what days we went??? Now I am having a bad brain day but it still feels like it shouldn't be this hard?
Come next week there will be no way in the world I'll be able to pull the days out, and the week after that well who knows. I can't ever seem to get past that point of thinking that I'm going to remember these things but then in three weeks I'll be amazed at how much is gone.

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A MyEpile...