Hello, I have 90% of my seizures in bed, usually in the early morning when I think I am changing sleep states. Maybe coming out of REM or something? My memory gets pretty blanked out around when they happen. I've averaged them once a month for a few years, but they seem to be coming more frequently this last year.
Is there a most common time of day and/or frequency of seizures for folks reading this?
Hi John, we have an appointment Tuesday so hopefully will get some more answers then.
Thank you for your response. I don't know that I do have sleep apnea because the test didn't go well. I decided to test because my mom/sister have it.
It would be scary to wake up in blood.... maybe you need a padded cell lol.
Since there is no cure, "managing" seizures is the key. Keppra works better for me than Lamictal. This is where individuals react differently to meds. Like you, I use an app on my phone for tracking. I use one called "Track It". I also fill about a months worth of pill containers for my meds and have an alarm set on my phone. This keeps me pretty compliant on my meds.
Probably the biggest thing that I have worked on with decent results is learning to relax. I enjoy being outdoors playing with flowers and watching birds. Music helps too.
I wish I could find a neurologist that I like. Currently, I am being treated by my primary care physician because he listens to me instead of just trying to push more and more eeg tests. I trust him. The day he agreed to treat me, I felt like the weight of the world had been lifted. That being said, he is not a neurologist. This website has been extremely helpful and I am now working toward a plan including "rescue" meds. Last seizure, I took Klonopin. It seemed to minimize the seizure and I slept instead of having waves of nausea and fear. Either way, I am tired for a couple days afterwards. Next time, I will take a half dose and see what happens.
Best of luck with your journey🥰
Epilepsy Foundation - Facts & Statistics About Epilepsy: https://www.epilepsy.com/what-is-epilepsy/stati...
US National Library of Medicine: Epileptic Seizure Cycles: Six Common Clinical Misconceptions https://www.ncbi.nlm.nih.gov/pmc/articles/PMC83...
Mayo Clinic: Seizures https://www.mayoclinic.org/diseases-
Great! Hopefully answers and positive information! God bless you!
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